When Alli was a little more than one month old, Chip and I found ourselves rushing her to Children's Hospital at 2am. When she woke up to nurse, around 1:30- I noticed her body was lobster red... so I decided to take her temperature. When the thermometer didn't show signs of stopping after it hit 106-107 degrees, I woke Chip up and told him we needed to go to the hospital... now.
After some long and drawn out tests we were told that Alli had urinary reflux. It was a pretty severe case. Most one month
old's don't get
UTI's... and most cases of urinary reflux aren't even detected and often go away on their own by the time a child turns one.
We were given high doses of antibiotics and had to keep coming back every quarter to get
VCUG's (they put a small tube into the child's bladder, add a liquid that can be seen on the x-rays, and see how your body processes urine.... ) and ultrasounds.
When she turned one and she still hadn't out grown the reflux, we were told to continue with treatments and hopefully she'd outgrow it by two. When her 2
nd birthday came and went and still no signs of outgrowing it they told us the same story... wait another year to see if she outgrows it. They said if by 4 years old she was still experiencing the reflux that she'd have to get surgery... and if that didn't work, eventually a kidney transplant. We were very blessed that by age 3 1/2 no more signs of the reflux showed up on the tests.
HOWEVER... the long term effects of taking high doses of antibiotics daily took a huge toll on her immune system. If anyone near her and a runny nose, or sneezing or coughing, Alli would get severely sick for a month. I hated bringing her to nursery, because there were so many stupid and inconsiderate parents that would bring their children in with runny noses.... and then Alli would be the one to pay for it.
(remember: DON'T BRING YOUR CHILD TO NURSERY SICK... not even with a slight runny nose... you don't know what issues other children might have..... okay, rant done)
It's taken Alli some time to rebuild her immune system, but she is finally at par with her classmates.
Ever since she has been healed from her reflux, she hasn't had any problems with potty issues.... Until this past week or so.
This kid normally is like a camel. She can hold and hold her tinkles back. Once or twice we've even had an 8 hour drive and she hasn't gone once. Amazing. But lately this kid is needing to go every 15 minutes or so. She told me today that when she goes tinkle, it won't all come out. I was really worried that something wrong might be happening with her body again, so I called her doctor.
Our drive to the doctor's office (which normally would take 15-20 minutes..) lasted over an hour. Rush hour traffic mixed with snow and stupid drivers = not going anywhere anytime fast. The minute we pulled out of the parking spot Alli started complaining that she had to go 'right now!'.... I knew that I couldn't let her get out and go potty, as they needed a urine sample at the
dr's office. Wailing, screaming, and gnashing of teeth doesn't even come close to describe my one hour of pure torture in the car with that child. Finally my silent prayers were heard and Alli went quiet, still, and calm for the last 10 minutes of the drive.
Who knew that peeing in a cup could bring such joy. It was Alli's first experience with actually getting to go in a cup. She was amazed. I don't know if she was happier finally relieving herself.... or getting to pee in a cup and hand it off to someone.
The tests came back that she doesn't have a
UTI (or diabetes...) but..... the test wasn't exactly normal either. They are sending a sample down to a lab for more research.
The doctor explained that Alli might have 'Frequency Urgency Syndrome of Childhood'. She said I probably wouldn't believe her... but her daughter has the same thing. It could go away in a week, month, or year..AND keep coming and going at random times, but basically something is irritating her bladder and urging her to go every 15 minutes. She said we shouldn't get mad that Alli has to get up 27+ times every night before to pee, before she finally goes to sleep. She even wrote a note to Alli's school explaining her theory.
I'm waiting for the tests to come back.
Have any of you heard of such a thing before?